Hunter Sanchez, one of ACCFCB's seriously ill children is currently raising funds to support other sick kids! We are extremely grateful to Hunter, his Maple Hill Committee and the Schodack community for this assistance! Gratefully Yours, John Smith www.accfcb.org
Hunter Sanchez will present funds at ACCFCB's 8th annual 'Teed off for Tots' golf event on June 29, 2012.
Hunter previously received ACCFCB's 3rd annual 'Teed off for Tots' Courage Award at the age of 9 in 2006.
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Update from Mom, Eileen-
"After a very trying 2011 with many episodes of sepsis and a stay in a pediatric skilled nursing facility, Becca is now home. In February, she suddenly was unable to bear weight on her right side and was in tremendous pain. An MRI showed degenerative disc disease in her spine, with a herniated disc at L5-S1. We have been inpatient for this, and have attempted PT without success. She is able to walk a bit more now, and we are encouraging her to get up and move as much as she can tolerate. The pain is a constant battle trying many different meds to keep her comfortable. We have moved her bedroom downstairs to the living room and made modifications to the house to make her comfortable. The degeneration of her spine is due to her body not being able to absorb the nutrients from food, she is now on IV's 7 days a week, and we are running out of good veins to use for the next port spot. As long as we can keep her out of pain and happy, we are happy."
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Rebecca was born with special needs and diagnosed in 2003 with Mitochondrial Complex 2 Deficiency, a life threatening condition causing her body to not properly turn food into energy. It becomes harder to sustain energy levels and it compromises the digestive & immune system.
Rebecca is "such a sweet soul even with all she's been through. When she's herself, she is happy and loves to sing and dance. Becca loves music from Big Band to Patsy Cline, current pop & good old rock & roll." Mom said that "most days if you ask her what she'd like to do for the day, she says in her tiny, little, sweet voice 'we go to airport?' She loves to people watch and attend outings. She has a great time at live hockey games."
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During the month of March and April ACCFCB was unsuccessful in our attempt to be the recipient of a $1000 donation from a local CPA firm. We take this opportunity to say thank you for all of your continued support!Way to have voted:2. Click the register link3. Enter a username and type your e-mail address and click the Register button4. Check your e-mail for a message from Hedley & Co. that will contain your password5. Copy your password and click on the link in the e-mail to go to the voting page6. Type your username and password on the voting page and click “Log In”7. Find us on the list and click the button next to our name8. Click the Vote button on the bottom to submit your vote
via www.accfcb.org
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